Genomic Data Sharing Policy

The Framingham Heart Study (FHS) is committed to data sharing and adhering to the NIH Genetic Data Sharing Policy. As such, all resultant genetic/genomic data generated from approved ancillary studies must be returned to FHS Data Management in accordance with the NIH Genetic Data Sharing Policy.

Since 2007 FHS has submitted over 300 phenotype datasets containing approximately 30,000 demographic, clinical, and exposure variables and tens of millions individual level genotypes across approximately 15,000 FHS participants. This effort responded to the NIH GWAS SHARe policy for data sharing, but has extended well beyond that mandate.

Key points include: