LEGACY process beginning with Informed consent then Tissue procurement then Tissue storage at Boston University and finally in the LEGACY Biobank Atlas (deidentified data repository for scientific community)
About the FHS LEGACY Process
All data and tissue received from the FHS LEGACY program will be identified only by a FHS LEGACY ID – no identifiers will ever be associated with your donation, and all data remains anonymous.
Any researcher interested in using FHS LEGACY data or samples is required to provide a detailed scientific proposal with a strong rationale for science, funding, expertise, and implementation feasibility that will be reviewed by a FHS LEGACY Scientific Committee.
All data for LEGACY will be under the direction of the FHS LEGACY Co-Directors and supervision of the FHS PI, Dr. Donald Lloyd-Jones, and the FHS Executive Committee.
All scientific discoveries and publications from the LEGACY program will be available online for all LEGACY and FHS participants and the public to access and review.
